Red Lion Group

Pouch support group registered charity number 1068124

 
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Information Day 2012 - 12th May 2012

Apologies for those who have seen a different date published for this year's Information Day, but we have had to make a change to the date when this event is held. For 2012, the Information Day takes a new twist. This time we will start at 12 noon and a buffet lunch will provided, allowing time for people to chat and exchange experiences. We will have presentations from consultants and specialists, and also a question and answer session in an "ask the panel" format. This is an excellent opportunity to discuss issues concerning your pouch, in a forum where others may learn as well. Workshops will be for male and female pouchees, with a new group for pouch owner partners. At the end of the afternoon, we hope that you will come for an early meal at Pizza Express, which is just a mile walk from the hospital. Please come back to this page as we will be adding details of the speakers when confirmed, and a form to register your attendance. Venue is St Marks Hospital, Harrow.

We are still confirming arrangements with speakers / presenters, but expect to have a laparoscopy surgeon as well as other consultants. Letters will go out to members with application form for the event, by early February.

 

Information Day - 16 April 2011

Thank you to everyone who came to this year's Information Day, on 16th April 2011. We had presentations from consultant colorectal surgeon Sue Clarke on pouch surgery, Pharmacist Yee Kee Chung on pros and cons of medication available for pouchees, research fellow Dr Jon Landy on pouchitis, and Zarah Perry-Woodford on pregnancy and fertility for pouch owners. We had some great debate in the afternoon workshops. The presentations have been captured and information will be published in the Roar! magazine. Join up to receive your copy! 
 

More newsletters available in the archive

Not only have the latest issues of our newsletter Roar! been uploaded to the website, but an additional 15 issues prior to 2004 are now available. The latest issues can be downloaded by clicking on the links in the Roar! Archive box on the left, or click More to access all 31 issues that are available. We hope to upload the remaining 9 issues in the near future. In the meantime keep your eyes peeled for issue number 41 which should be out in time for Christmas.
 

My Catheter Conversion

I’ve just had to pay a large fine for wasting hospital time – or at least I should have done. That’s the view of a stomacare nurse when I told her I’d started using a Medina catheter for the first time.

“Just think, you’ve spent twelve years hanging around in hospital waiting-rooms, going to appointments with puzzled consultants and making worried phone calls about your troublesome pouch when all you had to do was use a catheter,” she told me.

And she was quite right of course. For in 1996 I was given one of these long thin plastic tubes by a nurse specialist at St Mark’s to try and clear my reluctant pouch.

Read more...
 

Water, Water, Everywhere

Water, water everywhere, and not a drop to drink. These words from Coleridge’s The Ancient Mariner almost came true for Red Lion member Emma Edwards and family when their water rates rose so high that they nearly had to cancel their annual bill.

Emma’s problems started when her supplier Thames Water fitted a meter to her family’s household supply and they found their water bill rose by £130-a-year. She wrote to Thames Water and pointed out that she had a medical condition that meant she had to go to the loo 10-12 times in 24 hours and thus used more water than most people.

Read more...
 
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