Red Lion Group

Registered Charity number 1068124 in the United Kingdom

 
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My Catheter Conversion

I’ve just had to pay a large fine for wasting hospital time – or at least I should have done. That’s the view of a stomacare nurse when I told her I’d started using a Medina catheter for the first time.

“Just think, you’ve spent twelve years hanging around in hospital waiting-rooms, going to appointments with puzzled consultants and making worried phone calls about your troublesome pouch when all you had to do was use a catheter,” she told me.

And she was quite right of course. For in 1996 I was given one of these long thin plastic tubes by a nurse specialist at St Mark’s to try and clear my reluctant pouch.

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Water, Water, Everywhere

Water, water everywhere, and not a drop to drink. These words from Coleridge’s The Ancient Mariner almost came true for Red Lion member Emma Edwards and family when their water rates rose so high that they nearly had to cancel their annual bill.

Emma’s problems started when her supplier Thames Water fitted a meter to her family’s household supply and they found their water bill rose by £130-a-year. She wrote to Thames Water and pointed out that she had a medical condition that meant she had to go to the loo 10-12 times in 24 hours and thus used more water than most people.

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2009 Information Day All Set for Saturday 25 April

The Red Lion Group Annual General Meeting and Information Day will take place on Saturday 25 April at the Himsworth Hall Education Centre, St. Mark's Hospital, Northwick Park.

The first seminar of the morning will be a presentation by pouch pioneer surgeon Professor John Nicholls who will take a look at future developments. This is followed by a Brains Trust question and answer session with a panel of pouch experts. At the last session before lunch, Dr Parth Paskaran will review that the latest pouch research.

The formal annual general meeting will then take place followed by lunch and a raffle. The first seminar after lunch sees Ellie Bradshaw looking at effective pouch emptying. This is followed by three breakout sessions running in parallel on the Medina catheter, diet and pouch dysfunction. Afterward attendees can choose to attend a further breakout session, either for female pouch owners, male pouch owners or partners.

The full detailed programme can be downloaded from this website.

The cost of the event is £3 per head. If you would like to attend, please download an application form and return it to the address shown by 15 April.

Details of car parking and transport links can be found on the application form.

 

Welcome to the Red Lion Group website

The Red Lion Group is a UK charity for people who have, or are considering having, an ileo-anal pouch.

The charity was founded in 1994 by a group of patients and staff at St. Mark's Hospital in London. Members receive a newsletter two or three times a year containing useful advice and support. Every year in late April we hold an Information Day consisting of seminars and workshops covering a range of topics of interest to pouch owners and those considering having the operation.

 

Travel Insurance for Pouch Owners

If you have been looking around for travel insurance it is likely that you will have encountered the following problem: finding quality cover at a reasonable price once you have declared that you have a medical condition.

That’s why we have worked with Leisure & Lifestyle Insurance Services Limited to offer a travel insurance policy specifically for the Red Lion Group.

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