Red Lion Group

Pouch support group registered charity number 1068124

 
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More newsletters available in the archive

Not only have the latest issues of our newsletter Roar! been uploaded to the website, but an additional 15 issues prior to 2004 are now available. The latest issues can be downloaded by clicking on the links in the Roar! Archive box on the left, or click More to access all 31 issues that are available. We hope to upload the remaining 9 issues in the near future. In the meantime keep your eyes peeled for issue number 41 which should be out in time for Christmas.
 

My Catheter Conversion

I’ve just had to pay a large fine for wasting hospital time – or at least I should have done. That’s the view of a stomacare nurse when I told her I’d started using a Medina catheter for the first time.

“Just think, you’ve spent twelve years hanging around in hospital waiting-rooms, going to appointments with puzzled consultants and making worried phone calls about your troublesome pouch when all you had to do was use a catheter,” she told me.

And she was quite right of course. For in 1996 I was given one of these long thin plastic tubes by a nurse specialist at St Mark’s to try and clear my reluctant pouch.

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Water, Water, Everywhere

Water, water everywhere, and not a drop to drink. These words from Coleridge’s The Ancient Mariner almost came true for Red Lion member Emma Edwards and family when their water rates rose so high that they nearly had to cancel their annual bill.

Emma’s problems started when her supplier Thames Water fitted a meter to her family’s household supply and they found their water bill rose by £130-a-year. She wrote to Thames Water and pointed out that she had a medical condition that meant she had to go to the loo 10-12 times in 24 hours and thus used more water than most people.

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Welcome to the Red Lion Group pouch support website

The Red Lion Group is a UK pouch support charity for people who have, or are considering having, an ileo-anal pouch.

The charity was founded in 1994 by a group of patients and staff at St. Mark's Hospital in London. Members receive a newsletter two or three times a year containing useful advice and support. Every year in late April we hold an Information Day consisting of seminars and workshops covering a range of topics of interest to pouch owners and those considering having the operation.

 

Travel Insurance for Pouch Owners

If you have been looking around for travel insurance it is likely that you will have encountered the following problem: finding quality cover at a reasonable price once you have declared that you have a medical condition.

That’s why we have worked with Leisure & Lifestyle Insurance Services Limited to offer a travel insurance policy specifically for the Red Lion Group.

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