Red Lion Group

Pouch support group registered charity number 1068124

 
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Information Day 2010

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Television presenter and cancer campaigner Lynn Faulds-Wood will be guest speaker at next year’s Information Day on 17 April, 2010.

Lynn was a breakfast-time television pioneer, presenting TV-am and many of the BBC’s early breakfast shows. Then for eight year she co-presented Watchdog, the TV consumer programme, with husband John Stapleton.

After a long spell of bowel cancer, the Scottish-born presenter was a patient at St Mark’s Hospital, later setting up the charity Bowel Cancer.

Lynn even persuaded Prince Charles to say “bottoms and bowels” on TV. Book your place at the 2010 event now and listen to Lynn tell her moving story.

 

More newsletters available in the archive

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Not only have the latest issues of our newsletter Roar! been uploaded to the website, but an additional 15 issues prior to 2004 are now available. The latest issues can be downloaded by clicking on the links in the Roar! Archive box on the left, or click More to access all 31 issues that are available. We hope to upload the remaining 9 issues in the near future. In the meantime keep your eyes peeled for issue number 41 which should be out in time for Christmas.
Last Updated ( Sunday, 22 November 2009 22:23 )
 

My Catheter Conversion

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I’ve just had to pay a large fine for wasting hospital time – or at least I should have done. That’s the view of a stomacare nurse when I told her I’d started using a Medina catheter for the first time.

“Just think, you’ve spent twelve years hanging around in hospital waiting-rooms, going to appointments with puzzled consultants and making worried phone calls about your troublesome pouch when all you had to do was use a catheter,” she told me.

And she was quite right of course. For in 1996 I was given one of these long thin plastic tubes by a nurse specialist at St Mark’s to try and clear my reluctant pouch.

Last Updated ( Tuesday, 19 May 2009 21:06 ) Read more...
 

Water, Water, Everywhere

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Water, water everywhere, and not a drop to drink. These words from Coleridge’s The Ancient Mariner almost came true for Red Lion member Emma Edwards and family when their water rates rose so high that they nearly had to cancel their annual bill.

Emma’s problems started when her supplier Thames Water fitted a meter to her family’s household supply and they found their water bill rose by £130-a-year. She wrote to Thames Water and pointed out that she had a medical condition that meant she had to go to the loo 10-12 times in 24 hours and thus used more water than most people.

Read more...
 

2009 Information Day All Set for Saturday 25 April

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The Red Lion Group Annual General Meeting and Information Day will take place on Saturday 25 April at the Himsworth Hall Education Centre, St. Mark's Hospital, Northwick Park.

The first seminar of the morning will be a presentation by pouch pioneer surgeon Professor John Nicholls who will take a look at future developments. This is followed by a Brains Trust question and answer session with a panel of pouch experts. At the last session before lunch, Dr Parth Paskaran will review that the latest pouch research.

The formal annual general meeting will then take place followed by lunch and a raffle. The first seminar after lunch sees Ellie Bradshaw looking at effective pouch emptying. This is followed by three breakout sessions running in parallel on the Medina catheter, diet and pouch dysfunction. Afterward attendees can choose to attend a further breakout session, either for female pouch owners, male pouch owners or partners.

The full detailed programme can be downloaded from this website.

The cost of the event is £3 per head. If you would like to attend, please download an application form and return it to the address shown by 15 April.

Details of car parking and transport links can be found on the application form.

Last Updated ( Thursday, 19 March 2009 21:35 )
 
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